Comprehensive Stroke CenterRadiology

HHT Center of Excellence

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(415) 353-8867

The UCSF HHT Center of Excellence specializes in the comprehensive screening, diagnosis and treatment of hereditary hemorrhagic telangiectasia (HHT), a genetic disorder affecting the blood vessels. We have been designated a center of excellence by Cure HHT, the leading organization for HHT research, education and patient advocacy.

Because HHT can affect multiple parts of the body, our team includes experts in numerous fields. These include interventional and neurointerventional radiology, pediatrics, medical genetics, hematology, otolaryngology – head and neck surgery, cardiology, dermatology, gastroenterology, neurology, neurological surgery and pulmonology.

We trace each patient's genetic history of HHT and work closely with referring doctors to develop a personalized treatment plan.

Our clinic is associated with the UCSF Center for Cerebrovascular Research (CCR), which focuses its studies on vascular malformations of the brain. The CCR has a special interest in HHT, one of the few inherited causes of brain arteriovenous malformations (abnormal arteries and veins tangled together).

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Our Services

  • Patient education and management of HHT-associated symptoms and complications
  • The most advanced screening and diagnostic tests for serious complications of HHT, such as arteriovenous malformations
  • Minimally invasive approaches to treating HHT, offered at state-of-the art interventional and neurointerventional radiology facilities
  • Care by the neurointerventional radiologists who pioneered many of the treatments for arteriovenous malformations

Images and reports

Getting your results

A radiologist will review your images and write a report. When finalized, the report and your images will be available in MyChart, UCSF's secure online portal for patients. You can access this report as soon as this occurs, so you may see it before your referring doctor does. Learn more about receiving test results and medical reports in MyChart. If you have questions about a report, please contact your referring doctor.

To get a CD of your medical images and reports, send a request to the UCSF Imaging Library.

Sending images to UCSF

If you need to send medical images that were taken at another institution to your UCSF radiologist, you can do so through our secure online portal. For instructions, visit How to Send Radiology Images to UCSF.

Doctor referral may be required

Our locations

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    Our team

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    Decorative Caduceus

    National Liver Cancer Screening Trial

    Proportion of HCC detected at a late stage, defined as HCC beyond Milan Criteria (one tumor less than or equal to 5 cm or 2-3 tumors each less than or equal to 3 cm, in the absence of vascular invasion or extra-hepatic metastases)

    Recruiting

    Decorative Caduceus

    Comprehensive HHT Outcomes Registry of the United States (CHORUS)

    Utilizing the "HHT Baseline Assessment Scale," this measure focuses on recruiting a diverse cohort of HHT patients across North America. Comprehensive baseline clinical, demographic, and lifestyle data will be collected and entere...

    Recruiting

    Decorative Caduceus

    Functional Assessment in Liver Transplantation

    Grip strength: Performance-based. Measured in kilograms. This was measured in each subject's dominant hand using a hand dynamometer (Jamar Hydraulic hand dynamometer). We averaged three trials. Chair stands: Performance-based. Me...

    Recruiting

    Decorative Caduceus

    Chronic Thromboembolic Disease Registry

    The total number of patients who are alive

    Recruiting

    Decorative Caduceus

    Cerebral Hemorrhage Risk in Hereditary Hemorrhagic Telangiectasia

    This study will investigate predictors of brain outcomes in HHT patients. The investigators hypothesize that the presence of brain arteriovenous malformation (BAVM) in HHT patients versus HHT patients without BAVM and multiplicity...

    Recruiting

    Decorative Caduceus

    Hyperpolarized Pyruvate (13C) Magnetic Resonance Imaging In Patients With Fatty Liver Disease

    Establishing suitable radiofrequency (RF) coils for individual applications and proper use of MRI techniques such as parallel imaging to achieve optimal image quality will be conducted during the participant's scan. There is no fo...

    Recruiting

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    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your condition
    • List of your medications, including dosages, plus any you're allergic to
    • List of questions you may have
    • Device or paper for taking notes

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    Neurointerventional Radiology

    505 Parnassus Ave., Third Floor, Room L-349
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    Stroke Clinic

    400 Parnassus Ave., Eighth Floor
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    M-F, 8:30 a.m. - 5 p.m.

    Our research initiatives

    • UCSF-Center-for-Cerebrovascular-Research-2x

      UCSF Center for Cerebrovascular Research

      The UCSF Center for Cerebrovascular Research studies many aspects of cerebrovascular disease, from genetics to treatment outcomes, with a focus on vascular malformations of the brain.

      Learn more

    Do you need pediatric care?

    UCSF Benioff Children's Hospitals
    UCSF Benioff Children's Hospitals

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